For as long as I can remember, I have wished I could just cut off my head and regenerate a new one. My parents always like to joke that I was born with a very expensive head. By the time I was three years old, I had had three eye surgeries. By the time I was twelve, I needed braces and a dermatologist, and by the time I was sixteen, I needed my head shrunk. Unfortunately, we were never really able to afford braces and, luckily, college campuses come equipped with free counseling centers (and by "free", I mean built into the $40,000/year tuition.)
I guess it was also hoped that after three eye surgeries at ages 1, 2, and 3, I would be done. I was born with
strabismus, a muscular disorder affecting the eyes and their ability to work together. It was extremely bad when I was born, hence the willingness to put a baby/toddler under general anesthesia three times to cut into her eyes. My condition was greatly improved after the surgeries, but over time the muscles have weakened again. I am not exactly sure at what point my eyes started regressing, but in high school I became acutely self-conscious about it. At that point, it felt like it was largely a cosmetic issue with practical consequences. While working a summer job at an Auntie Anne's, I had a difficult time working the cash register because customers did not know if I was looking at them, and would just stand there waiting because they thought I was talking to someone else. I became so frustrated at times that I would yell at the person "YOU in the red shirt, hello??? What do you want??" Even then they didn't get it sometimes.
Over the past five years or so, my eyes have gotten even worse and are beginning to cause other physical problems. I have nauseating headaches almost daily, and constantly need to readjust my eyes. When I first started noticing it, I was hoping it just meant that I needed glasses. My vision was OK, though beginning to deteriorate in one of my eyes, because I relied so much on focusing it. My doctor prescribed my glasses in the hopes that it would force my eyes to work together. It didn't help much. Two years later, I went back to the doc, hoping again that the headaches and problems focusing were due to my vision. My prescription had not changed.
This winter I finally went to see a specialist in Boston, and after an hour of eye exercises, he explained that my strabismus had indeed worsened and he could practically see my muscles straining. At one point, I felt slightly akin to a circus freak, as he called other doctors into the office, saying, "Hey check this out, watch what her eyes are doing." Apparently my case is an interesting one. Bottom line is, if I don't have another surgery, my eyes will probably get worse, including the pain, headaches, and focusing problems.
The thought of someone cutting into my eye and tying tiny little stitches around the muscles terrifies me, but I know I really need to do it. My main comfort is knowing that I am in one of the best cities in the country for medical care.
My first hurdle has been contacting my old doctor from CA who performed all my surgeries,
Dr. Arthur Rosenbaum, and ordering my 25 year old medical records. God, that makes me feel old.